CURRICULUM VITAE 35 years of Field Work for SICKLE CELL ANEMIA

 

       NAME: DR.JYOTISHKUMAR ASHOKBHAI PATEL

       Birth date: 21-09-1961 Age: 61 years

 

   FAMILY BACKGROUND

       Father: Ashokbhai Limjibhai Patel (Dhodia Patel) who worked at Ashram shala, Borisaver Ta. Songadh Dist: Tapi and then at Sarvajanik High school, Songadh for 35 years

       Mother: Vasantaben Chaudhari - daughter of Ramjibhai R Chaudhari - ex deputy minister Gujarat state from Mangrol

       Wife:   Dr.Bharati Patel
MBBS

       Son:     Dr.Marmik Patel MBBS, MD Medicine

       Daughter in law: Dr.Pooja M Patel Master of Physiotherapy in Neurology(University first)

       Son:     Dr.Malvik Patel MBBS, Diploma in pediatrics Associate pediatrician & neonatologist at Shishudeep hospital, Bardoli.

       Daughter in law: Dr.Neha Patel MD Obstetrics & Gynecology

 

   ADDRESS

       Sickle Cell Treatment And Research Centre

       Shishudeep Multispeciality Hospital

       Vision Medical Foundation for Rural Health and Research E/5182/Surat

       Bardoli 394601 Dist: Surat Gujarat State E mail : sicklegujarat@gmail.com

       Web address: www.sickleindia.com

       Contact no: 02622 221135(O) 221342(R) +91 98252 78224Mobile)

 

    EDUCATION

        Primary education: Ashramshala, Borisavar, Dist: Tapi

        Secondary education: Sarvajanik High school, Songadh Dist: Tapi

        MBBS & MD Pediatrics: Government Medical College, M S University, Vadodara.

 

    MILE STONES OF SICKLE CELL WORK

     1983

            I got sensitized to issue of Sickle cell while working as an intern in Sardar Hospital,

            Bardoli due to difference in profile of case I show & what was mentioned in medical Textbook.

           1985

           Wrote thesis on 'Sickle cell anemia: Clinico-hematological correlation   in Tribal

           Community’ as a part of my study for MD Pediatrics.

           Pediatrics

          

     1989 onwards till today 

·      Established laboratory facility to diagnose Sickle cell in south Gujarat 

·      Sensitized doctors, social leaders, politicians, government official for Sickle cell 

·      Established special clinic for Sickle cell treatment 

·      Presented research studies in state and national conference 

          

         Books written & published for 

• Sickle cell anemia in Gujarati, Hindi for non medical person

·      Treatment guide to Sickle cell anemia in English for doctors

• Published educational CD in Gujarati & English for Sickle cell anemia
• Designed first dedicated web site for Sickle cell www.sickleindia.com from India 
• Started first Mobile Sickle cell clinic of India for door step facility of Sickle cell cases in village 

          

         AT INTERNATIONAL LEVEL 

         Represented India during international Sickle cell conference

·      Cotonoue, Benin in 2006

·      Atlanta USA in 2012

·      Abu Dhabi in 2015

·      Member, organizing committee, Global Sickle Congress 2017

 

     CONFERENCE ORGANISED

·      1^st Gujarat State Conference for Sickle cell anemia – 2006

·      1^st Regional Conference – SICKLE CELL UPDATE 2020(Gujarat-Maharashtra-Madhypradesh) 18-19^th January, 2020

 

     AFFILIATION AS AN EXPERT

·      Sickle cell learning course by UMVM, Monaco 

·      Governing body, Sickle cell institute, Chhattisgarh Government, India 

·      Member of Governing body, Sickle cell control society, Gujarat Government, India 

·      Member, Team India for Rare disorder and Orphan Drugs, Pharmexcil. 

 

     SICKLE CELL SWA SURAKSHA ABHIYAN 

        A model project designed to address Sickle cell issue with community participation based on 25 years experience.

 

     SOCIAL WORK DONE MOTIVATIONAL PROGRAMME FOR SCHOOL & COLLEGE STUDENTS

·      ENJOY EXAM SEMINAR- A motivating seminar for 8 to 12 grade students of high school and college By now 25,000 students got inspired through this seminar and have shown remarkable improvement in result

·      POSITIVE PARENTING SEMINAR Parenting art being taught scientifically to parents. By now 15000 parents have taken advantage of this seminar

 

·      POLITICAL INPUT AT VARIOUS LEVEL

o   2004

Fought election as an Independent candidate for member of Parliament seat at 25 Mandvi (ST)Constituency

The issues focused were education, economy, specific health issue in tribal population namely Sickle cell anemia, irrigation, skill development in youth

I got 25056 votes - highest votes secured by an indepent candidate in Gujarat state

o   2009 Joined BHARATIYA JANATA PARTY

I willingly joined national party BJP

2009 General election: actively participated in canvassing. First time use of LCD projector and computerized power point presentation in villages. 22-night election campaign street assembly

were addressed by me with improvement in BJP votes

o   Responsibilities since then

o   2009-10 Vice president of BJP, Bardoli

o   2010 to 2015

Ex councilor in Nagar Palika, Bardoli

2013 till today

Convener, Intelligence cell, BJP, Surat District

 

     LITERATURE

       Books written

       o ENJOY EXAM

       o POSITIVE PARENTING

       o ADIVASI NA ADARSHO

       o SARAL SUVAKYA

       o SICKLE CELL ANEMIA

       o POLITICS PAVITRA CHHE

       o M Square Book Palace: A worthy place to visit in Bardoli to see and purchase books

 

    RECENT PUBLICATION

·      Patel, Jyotish et al. “Screening for the Sickle Cell Gene in Gujarat, India: a Village-Based Model.” Journal of Community Genetics 4.1 (2013): 43–47.PMC. Web. 2 Dec. 2014

·      Newborn Screening for Sickle Cell Disease in India: The Need for Defining Optimal Clinical Care: Jyotish Patel, Graham R. Serjeant The Indian Journal of Pediatrics March 2014, Volume 81, Issue 3, pp 229-230

·      Sickle Cell Disease in India: A perspective

·      How Common Is Malaria In Sickle Cell Crisis: Retrospective Study Of 180 Case

 

 

    INVITED GUEST SPEAKER

       ·      Sickle cell control program, NRHM, Maharastra

       ·      Indian Medical Association at state & national conference

       ·      Indian Academy of Pediatrics: at state level

       ·      International conference on Sickle cell disease, Raipur (CG)

       ·      FOGCI

       ·      In 3^rd Global Sickle Cell Congress 2017

o   Guest speaker

1.     “Malaria & Sickle Cell Haemoglobinopathy: Morbidity pattern” 
Jyotish Patel, MD; Sickle Cell Treatment & Research Centre, Shishudeep Hospital, Bardoli Gujarat, India

2.     “Sickle is NOT Simple: Sickle cell crisis & its outcome: Gujarat experience”
Jyotish Patel, MD; Sickle Cell Treatment & Research Centre, Shishudeep Hospital, Bardoli Gujarat, India

       ·      Pediconnagpur2018, Annual conference, Indian academy of Pediatrics

o   Guest speaker for Sickle cell workshop

1.     Advances in Sickle cell crisis management

2.     Hands on workshop – Sickling test, Hb electrophoresis, HPLC

       ·      Invited faculty in Webinars at National & International Levels

       ·      First Brainstorming Meeting on CRISPR mediated genetic correction of Sickle Cell disease: Towards clinical trials of a small patient cohort Raipur 22-23 May 2022_DST Sickle Cell Anemia Clinical Trial-By Department of Science & Technology & Department of Tribal Affairs, India

       ·      Invited as a faculty on 19^th June 2022, World Sickle Cell Day, Jabalpur MP, A national level seminar by ICMR-NIRTH.

    HONORS AND AWARDS

       1.     By Adivasi Ekta Parisad, India

       2.     By Bardoli Pradesh Vikash Vartul for contribution in development of Bardoli town

       3.     By Minister of Tribal affairs, Gujarat state

       4.     By Indian Friendship society for contribution in Sickle cell anemia at national level

       5.     By honorable Chief Minister Shri Narendra Modi for contribution of work for SICKLE CELL ANEMIA - a dreadful disease amongst tribal people

     VISION & MISSION

          Inaugurated nation’s first Super specialty hospital for Sickle cell “SHISHUDEEP MULTI SPECIALTY HOSPITAL – A super specialty healthcare institute” on 2nd         December 2018 by Dr. Graham Serjeant & Dr. S L Kate